NSHD Publications
Listed below are publications using data from the National Survey on Health and Disability (NSHD) as of November 2024:
1. Ipsen C, Sage R, Standley K. (in press). "Too few, too far away, for what is paid": Consumer voices about the personal assistance worker crisis. Disability and Health Journal. https://doi.org/10.1016/j.dhjo.2024.101721
2. Hall JP, Kurth NK, McCorkell L, and Goddard KS. (2024). Long COVID Among People with Preexisting Disabilities. American Journal of Public Health. Open Access available at:https://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2024.307794 (plain language summary)
3. Hall JP, Goddard KS, Ipsen C, Myers A, and Kurth NK. (2024, online first) Counting Everyone: Evidence for Inclusive Measures of Disability in Federal Surveys. Health Affairs Scholar. https://academic.oup.com/healthaffairsscholar/advance-article/doi/10.1093/haschl/qxae106/7737826 (plain language summary)
4. Goddard KS, Ipsen C, Myers A. (2024). The Hidden Crisis: Long COVID’s Association with Housing Stability and Home Accessibility Among People with Disabilities. Disability and Health Journal. Available online ahead of print: https://doi.org/10.1016/j.dhjo.2024.101650 (plain language summary)
5. Schultz JA, Hall JP, West JC, Glasser AM, Bourne DE, Delnevo CD, & Villanti AC. (2024). Measuring disability among U.S. adolescents and young adults: A survey measurement experiment. Preventive Medicine Reports. Available online ahead of print: https://www.sciencedirect.com/science/article/pii/S2211335524001852 (plain language summary)
6.Sullivan, DL, Kurth, NK, Hall, JP and Goddard, KS (2024). Household Structure, Loneliness, and Food Insufficiency Among Working-Age Adults With Disabilities During the COVID-19 Pandemic Ciciurkaite, G. and Brown, R.L. (Ed.) Disability and the Changing Contexts of Family and Personal Relationships (Research in Social Science and Disability, Vol. 15), Emerald Publishing Limited, Leeds. 43-59. https://doi.org/10.1108/S1479-354720240000015005 (plain language summary)
7. Mulcahy A, Batza K, Goddard K., McMaughan DJ, Kurth NK, Streed CG, Wallish AM, & Hall JP. (2023). Experiences of patients with disabilities and sexual or gender minority status during healthcare interactions. Journal of Public Health (Berl.). https://doi.org/10.1007/s10389-023-02145-3 (plain language summary)
8. McMaughan DJ, Mulcahy A, McGehee A, Streed CJ, Wallisch AM, Kurth NK, & Hall JH. (2023, online ahead of print). Gender diversity, disability, and wellness: impact of delayed and foregone care because of COVID-19. LGBT Health. http://doi.org/10.1089/lgbt.2022.0385 (plain language summary)
9. Wallisch, A., Boyd, B., Hall, J.P., Kurth, N.K., Streed, C.G., Mulcahy, A., McMaughan, D.J., & Batza, K. (2023). Healthcare disparities among autistic, LGBTQ+ people. Autism in Adulthood. Online First: https://doi.org/10.1089/aut.2022.0006 (plain language summary)
10. Goddard, K., Hall JP, & Kurth NK. (2022). Examining differences in self-reported health and access to health care among people with early- and late-onset disability. Journal of Disability Policy Studies 34(4),260-65. https://doi.org/10.1177/10442073221142253 (plain language summary)
11. Hall JP, Kurth NK, Ipsen C, Myers A, & Goddard, K. (2022) Comparing measures of functional difficulty with self-identified disability: Implications for Health Policy. Health Affairs, 41(10). (plain language summary)
12. Sage, R., Standley, K., & Ipsen, C. (2022). "Everything is a Mess. I'm Just Trying to Survive It.": Impacts of COVID-19 on Personal Assistance Services. Journal of Health Care for the Poor and Underserved33(4), 1844-1864. https://www.muse.jhu.edu/article/868694 (plain language summary)
13. Gimm G. & Ipsen C. (2022). Examining rural-urban disparities in perceived need for health care services among adults with disabilities. Frontiers in Rehabilitation Sciences, 3:875978. (plain language summary)
14. Mulcahy A, Streed CG, Wallisch AM, Batza, K, Kurth NK, Hall JP, 7 & McMaughan DJ. (2022). Gender Identity, Disability and Unmet Healthcare Needs among Disabled People Living in the Community in the United States. International Journal of Environmental Research and Public Health, 19(5), 2588. (plain language summary)
15. Ipsen C & Repke M. (2022). Reaching people with disabilities to learn about their experiences of social connection and loneliness. Disability and Health Journal,15(1). (plain language summary)
16. Hughes PM, Wu BS, Annis EI, Brunelli, BA, Kurth NK, Hall JP, & Thomas KC. (2022). Association of inadequate provider networks with unmet need for health services and self-employment among people with disabilities. Journal of Health Care for the Poor and Underserved, 33(2), 984-997. (plain language summary)
17. Streed CG, Hall JP, Boyd BA, Batza K, & Kurth NK. (2021) Characteristics of sexual and gender minority respondents of the 2019-2020 National Survey on Health and Disabilities. LGBT Health 8(8), 563-568. (plain language summary)
18. Research and Training Center on Disability in Rural Communities. (2021). Social isolation and loneliness among rural and urban people with disabilities. Author: Missoula, MT. (plain language summary)
19. Hall JP, Kurth NK, Goddard K. (2021). Assessing factors associated with social connectedness in adults with mobility disabilities. Disability and Health Journal, special issue. (plain language summary)
20. Ipsen C, Kurth NK, Hall JP. (2021) Evaluating MTurk as a recruitment tool for rural people with disabilities. Disability and Health Journal. (plain language summary)
21. Hall JP, Batza K, Streed CG, Boyd BA, Kurth NK. (2020) Health Disparities Among Sexual and Gender Minorities with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders. 2020:1-7. doi:10.1007/s10803-020-04399-2. (plain language summary)
22. Smith S, Hall JP, Kurth NK. (2020) Perspectives on health policy from people with disabilities. Journal of Disability Policy Studies. (plain language summary)
23. The Research and Training Center on Disability in Rural Communities. (August 2020). America at a Glance: Social isolation and loneliness during the first wave of COVID-19. Missoula, MT: The University of Montana Rural Institute for Inclusive Communities. (plain language summary)
24. Hall JP, Kurth NK. (2019). A Comparison of Health Disparities Among Americans With Intellectual Disability and/or Autism Spectrum Disorder and Americans With Other Disabilities. Inclusion 7(3), 160-168. doi: 10.1352/2326-6988-7.3.160 (plain language summary)
25. Repke MA, Ipsen C. (2019). Differences in social connectedness and perceived isolation among rural and urban adults with disabilities. Disability and Health Journal. 13(1), doi:10.1016/j.dhjo.2019.100829. (plain language summary)