Collaborative on Health Reform and Independent Living

Visit NSHD for information about the National Survey on Health and Disability


The hypothesis posed by KU-IHDPS staff leading CHRIL research project 1: coverage expansions under the ACA and other health reforms will have a positive effect on the health, function, quality of life and community participation of working-age adults with disabilities. Project 1 directly assesses consumer-reported experiences via primary data collection. In Year 1 (2016), the project used data from the Urban Institute's nationally-representative Health Reform Monitoring Survey (HRMS) to understand baseline conditions for people with disabilities just prior to and shortly after ACA implementation. In years 2 and 4 (2017 and 2019), the project conducted national interviews with consumers to gain a richer understanding of their individual experiences. In years 3 and 5 (2018 and 2020), the project fielded a national consumer survey to better assess longer-term experiences and outcomes. Overall, this project documents the experiences of working-age adults with disabilities in obtaining and maintaining health insurance, and assess the impact of insurance on access to care, health and function. It provides near “real-time” insights on the lived consequences of health reform during and after ACA implementation, and will also inform other CHRIL research projects and KT activities.

Visit the website of the Collaborative on Health Reform and Independent Living (CHRIL) for more information about the CHRIL as a whole.

Jean P. Hall, Ph.D. - Co-Principal Investigator


Noelle K. Kurth, M.S. - Research Associate, NSHD Administrator