IHDPS PROJECTS - (Alphabetical) Current and Completed
The ASPIRE project is a consortium of six western states (AZ, CO, MT, ND, SD, UT) funded by the US Department of Education as part of the national PROMISE (Promoting the Readiness of Minors in Supplemental Security Income) initiative. States awarded PROMISE funding are working to establish and operate model demonstration projects designed to improve the education and employment outcomes of child Supplemental Security Income (SSI) recipients and their families. With colleagues from the University of Montana and the University of Utah, IHDPS staff serve as the Evaluation team for the ASPIRE Project.
Funded by the CDC Surveillance grant through the Kansas Department of Health and Environment, the goal of this project is to expand disability data surveillance in Kansas by enhancing utilization of existing but underutilized secondary disability data and expanding the use of the Behavioral Risk Factor Surveillance System to more fully understand and meet the needs of persons with disabilities statewide.
The Collaborative on Health Reform and Independent Living (CHRIL) a 5-year Disability and Rehabilitation Research Program (DRRP) funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90DP0075-01-00). The CHRIL brings together disability advocates and researchers from 4 institutions (Washington State University, the University of Kansas, George Mason University, and the Independent Living Research Utilization program at TIRR Memorial Hermann Hospital) to systematically investigate and disseminate essential findings about how implementation of the Affordable Care Act (ACA) affects working age adults with disabilities.
Effectiveness of Medicaid Home and Community-Based Services (HCBS) for Persons with Multiple SclerosisYear(s): 2014-2015
With funding from the National Multiple Sclerosis (MS) Society and in collaboration with Dr. Theresa Shireman from the University of Kansas School of Medicine Department of Preventive Medicine and Public Health, IHDPS staff are conducting research that will provide concrete tools to the National MS Society to help guide persons with MS to available support long term care services and supports offered through Medicaid in their state and to drive policy initiatives to improve critical services availability across public and private payers.
Sponsored by a grant from The Commonwealth Fund, this project evaluated high-risk pool programs across the country.
In cooperation with the University of Missouri Kansas City (UMKC) and funded by a partnership of the Missouri Association of County Developmental Disabilities Services, the Division of Developmental Disabilities, and the MO HealthNet, IHDPS staff are evaluating Missouri's Partnership for Hope waiver. Partnership for Hope is county-based home and community-based waiver serving Missouri residents with intellectual & developmental disabilities.
Evaluation of the Pre-Existing Condition Insurance Plans Under the Affordable Care Act: Immediate and Long-Term Implications for Federal Health PolicyYear(s): 2011-2013
Sponsored by a grant from The Commonwealth Fund, this project monitors the implementation, operation, and enrollment in the PCIP programs nationally, with the intent of providing practical information to policy makers to make needed short-term adjustments to the PCIPs and to inform longer-term design and planning of exchange programs, particularly in relation to people with chronic conditions.
Independent, external evaluation of a project to test whether improved health care can prevent or forestall the loss of independence and employment due to a potentially disabling condition.
Disability and Health Programs are state-wide initiatives funded by the Centers for Disease Control and Prevention. Currently, the CDC funds 19 state programs that work to improve the health and quality of life among people with mobility limitations and/or intellectual disabilities (ID) through adaptation and implementation of evidence-based strategies in their communities. In cooperation with the Kansas Department of Health & Environment, the Institute for Health & Disability Policy Studies leads the effort in Kansas for the next five years.
Kansas Medicaid: Evaluating Program Satisfaction, Access to Care, and Unmet Needs of Adults with Serious Mental Illness (SMI)
Funded by the Health Care Foundation of Greater Kansas City, this 6-month evaluation project will document program satisfaction, access to care and unmet needs for Kansas Medicaid (KanCare) enrollees with serious mental illness (SMI) and identify factors associated with these outcomes. In partnership with Community Mental Health Centers (CMHCs), the project will conduct surveys with Medicaid enrollees across the state to document their experiences and concerns. Project final report available here.
A health home is not a building, a nursing home, or a doctor’s office. The term “health home” refers to a new Kansas Medicaid (KanCare) option to provide coordination of physical and behavioral health care with long term services and supports (LTSS) for people with chronic conditions. Health homes expand upon medical home models to include links to community and social supports. In collaboration with the Kansas Department of Health and Environment (KDHE) and the Kansas Division on Aging and Disability Services (KDADS), IHDPS staff are working with colleagues at the KU Medical Center to conduct data analysis to identify the populations and sub-populations of KanCare beneficiaries who may best be served by Health Homes.
In partnership with the National Disability Institute, the University of Utah, and others, IHDPS staff is working on this project to develop recommendations to modernize and preserve Social Security disability programs in ways that will optimize work opportunities for people with disabilities who are able to work and preserve the safety net for those who cannot.
With funding from the National Institute on Disability and Rehabilitation Research (NIDRR), this project documents long-term outcomes associated with increased work earnings and efforts of participants in Working Healthy, examines health and quality of life changes related to work, and fosters innovative data management techniques necessary to identify health disparities.
IHDPS staff, with funding from the Kansas Department of Health and Environment, are working with partners at the KU School of Social Welfare to review the instrument currently being used to assess the service needs of participants in the Work Opportunities Reward Kansans (WORK) optional Medicaid program for people with disabilities who are competitively employed.
Working Healthy allows people with disabilities to maintain Medicaid coverage when returning to or increasing employment. IHDPS staff members serve as external evaluators of the program.Under the same initiative, efforts continue to focus on increasing employment opportunities for Kansans with disabilities.