Effectiveness of Medicaid Home and Community-Based Services (HCBS) for Persons with Multiple Sclerosis
With funding from the National Multiple Sclerosis (MS) Society and in collaboration with Dr. Theresa Shireman from the University of Kansas School of Medicine Department of Preventive Medicine and Public Health, IHDPS staff are conducting research that will provide concrete tools for the National MS Society to help guide persons with MS to available support long term care services and supports offered through Medicaid in their state and to drive policy initiatives to improve critical services availability across public and private payers.
To better inform the MS Society and other policy makers on the value of HCBS resources for persons with MS, the project will:
1. Characterize state-by-state Medicaid HCBS availability, eligibility and covered services for persons with MS across the US.
2. Compare the effectiveness of HCBS services in reducing hospitalizations, re-admissions, nursing facility placement, and health care costs.
3. Obtain patients' perspectives on their experiences with HCBS LTSS across a variety of health insurance programs and their assessment of our findings for Medicaid.
Collectively, research findings from the activities above are expected to provide direct evidence along with personal narratives to support policy initiatives designed to maximize independence among persons with MS.